Sorry I have been delinquent in writing. Jesse has been fairly active this round making writing and getting work done difficult.
On Tuesday, Jesse and I came to clinic. We were late because traffic has returned from summer vacation. At clinic Jesse’s white line was the only line that would give us a blood return and enough to draw for labs.
By 10am, PICU was ready for her. And upstairs and into the same room we have had our other 3 stays we went.
Thank God we have gotten fantastic fabulous caring nurses this round. If I could have this group the other 2 times we have to be in PICU, it wouldn’t be that bad 🙂
Mike and I switched places Wednesday midday. I gave Jesse her shot before leaving. She has become so used to it that she doesn’t even cry, and today she barely screamed.
On Thursday I returned with McDd’s. Jesse ate that and half my quarter pounder. And still wanted more! On Tuesday she weighed 11.7 kg. Today she weighs 12.2 kg. Most of that is due to fluid.
The great thing this round is knock on wood she has not held her urine as she did the other two rounds. She has been going very well. Plus her fever didn’t start until later in the evening and was gone during the day. Yeah!
We did have trouble with her lines. On Wednesday morning they were not able to draw her labs from the CVL. This involved bringing in VAT team, and me reinterating I didn’t want a certain person near her.
The nurse that came from VAT was wonderful. She let me look at Jesse’s x-rays. Her line is definitely no longer in the super vena cava. It is in a vein. She felt this was because Jesse has grown.
She also felt that I and the nurses would never get another blood draw from those lines again. ( I felt she was wrong because onTuesday and Wednesday the leftovers of Lee were over top of us. And for some reason low pressure makes her lines act up).
The decision was made to insert a line in her arm for fluids and blood draws.
I left before the line went in. Mike said that they got the blood draws and after that nothing. He also said that Jesse embarrassed him horribly by not wanting a doll that was brought to her. Poor Mike 🙂
Strangely on Thursday, the line began giving a blood return. The nurses were able to draw labs Friday morning, then it began acting up again.
Friday we also had a little confusion about her bactrum. The PICU resident missed seeing that in her medicine list, but luckily that evening we had it all straight.
By Saturday morning at 12am, we were upstairs in 808. Jesse stayed up til 3am. I think our nurse was a little concerned she was up so long.
The next morning Jesse got her shot, antibiotics, a round of wagon racing, and we were out the door. We had debated about giving her a red blood transfusion because her red blood count was 7.9, but decided to see what happened.
Jesse and I were home by noon 🙂