This Is For The Birds

Having a kid with cancer is for the birds.

Jesse has been complaining about pain behind her knee since Tuesday. Normally we’d chalk it up to growling pains and move on… Normally.

Instead we go with that first while wondering in the back of our minds… Oh crap we are off treatment, please just let it be a growing pain.

Then yesterday and today she said her stomach hurt, and she has become very very picky on what she will eat. In fact she ate no lunch today.

Normally we’d go with potty training, fear of #2, and trying to control it.  But in the back of our minds is the nagging question of is she constipated again like she was before she was diagnosed. So I slipped her some Miralax.

Then she told me she was tired and wanted to take a nap. This is a child that doesn’t nap. My anxiety level climbed through the roof.

I debated calling her doctor, but felt that he would say let’s wait to see her scans later in April. And I completely understand. He would probably tell me to give her Miralax and see if that improves her stomach.

She did finally relieve her stomach pain this afternoon, but quite frankly my nerves are shot. I guess with time all of this will be easier to deal with.

I have also made her some tea, hoping that by getting her to drink more the leg pain will stop. I had been trying to switch her to water, but she doesn’t drink enough I feel. ( She still pees at least 7 times a day.)

Their dad will be home from work soon, and I am going for a run.

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April 1st Chili’s in Williamsburg helps conquer childhood cancer. Bring in the flyer above and 15% of your meal will be donated to help fight childhood cancer through St Baldrick’s, the #1 private funder of childhood cancer research in the USA.

They have funded several research studies at CHKD, and I feel this is a great way to tell her doctors thank you. Plus I asked CHKD how I could raise funds for the oncologists, and they suggested St Baldrick’s.

If you can’t make it, please consider donating to the link above. $1 will go a long away to helping researchers find ways to stop and cure cancer. Thank you!