Jesse and I arrived at CHKD for round 5 this morning. I tried going through the Downtown tunnel because we were running really early. Never again. Interesting tunnel, but took longer and traffic wow!
In clinic they had her hooked to Fred the IV Pole by 10am. This is a great thing because we can start chemo earlier than 7pm! This round we get etoposide and cisplatin. They will be constantly taking her blood pressure for the etoposide to monitor for heart trouble. The cisplatin will be fine going in… then a week later will rear it’s ugly head.
Jesse is also getting sodium thiosulfate. This drug will be given 6 hours after the chemo. The doctors are currently studying it on patients to see if it will protect hearing. Cisplatin has the potential to cause some hearing damage.
Then in 10 hours approximately rinse and repeat for 4 days. We will remain an additional 24 hours once chemo is completed to hydrate her as much as possible due to the cisplatin. I can’t remember if the etoposide is only given for 3 days… guess I’ll get a memory jog shortly 🙂
Jesse’s attitude today is not the best. Everything is setting her off in crying fits. I have put her in timeout twice. She is starving, but wants none of what I have to feed her. Basically she acts like she has been here for 5 days already. We’re going to have a long visit I feel…
That sweet little angel! I’ll be praying for you guys! If you need anything, want me to bring something, ANYTHING you need Soosan…..call me!! Hugs xoxo
Thank you! I really appreciate it 🙂 We have most everything and the nurses here are fantastic. In fact one has gone to make her corn dogs now. She watching classic scooby-doo. I hope she goes to bed early…. might have jinxed myself…