Jesse gets to stay an extra day

Fred let us down last night 🙁 Jesse’s etoposide was infused with no trouble. Then after an hour her cisplatin dose was still mostly in the bag. The doctor, pharmacist, and nurse decided to stop the infusion. Too much would cause serious damage. They also started investigating last night where the problem was.

They figured out that for some reason only 25% of the cisplatin was infused. She needs the other 75%… so she will get that on Saturday. We will be staying an extra day to give her this amount. It’s too important to miss this dose. She will get to leave possibly 8 hours after getting the cisplatin. But I have a feeling that our wonderful home health care people will do something that will allow us to stay here until late afternoon… or she will need blood. Please let us go home after having blood if we have to have blood. Getting red cells is worse than giving her a caffeinated soda and pixie stick. Last time she was up till 3am.

I also spoke with our doctor about our next step. After this round, Jesse will have a CT-Scan to see if there is any tumor that can be removed. He told me that most surgeons aren’t going to touch it because of the danger removing it will put her in. The tumor encases too many blood vessels that if cut… can’t be repaired.

Right now her quality of life is good.. She handles the chemo so well. I don’t know what radiation or the 5 anitbody treatments will be like. He did tell me that the antibody treatments will be worse than chemo.

Jesse has wanted to eat every 5 minutes today, and stayed awake until 6:50pm (missed her dad by 10 minutes…) She played really well… made it a little hard for me to get my work done. Figured I’d work on that now since we have the sodium thiosulfate at 12:30am. Why go to sleep when I’m going to be up in 2 hours? She did throw up from this drug last night. I’m expecting the same tonight… maybe this time I’ll be a little more on the draw, and it’ll all be in the bucket. Corn dogs regurgitated… that one got to me. The nurse threw away her bucket because the greasiness was still there after cleaning it out. Makes me rethink corn dogs… not Jesse she wanted more this morning…