Day 13 at St Jude

Mike and Christine arrived a little after 8pm CT last night. Jesse woke briefly to see them, and then was out again.

Mike told me about a very nice lady that helped them on the plane. Her sister had been a patient at St. Jude. I am very grateful for her help and kindness. It means so much 🙂

Chris and I slept on the little couch in the room. Mike took the recliner. Yes Chris and I could have gone to the Ronald McDonald House, but it felt so good to be all together.

In the morning, the infectious disease doctors stopped by. They warned us that even though Jesse’s swelling looks better it might get worse again when her neutrophil return. The floor doctors came in and said the same thing. I am just praying that most of this is infection, and while it will get worse… it will get better.

Jesse’s ANC is still 0. And her hemoglobin dropped to 7.4. Her platelets are at 130.

After her morning medications, the nurse started her blood transfusion.

With Chris being here and running all over the place, Jesse has decided that she’d like to get up. We had to wait for the blood transfusion to finish. During that time we got Jesse to eat fresh popcorn.

We put Jesse in the wheelchair when her transfusion was done. At the “cover porch”, Jesse got out of the wheelchair and walked around for a little bit. Then she walked back to the play area.

We have toured the hospital when she and Chris were done playing. Jesse showed her dad and sister Chili’s Care Center where they do the imaging and radiation.

This afternoon she sat and played/ fought with her sister.