Jesse’s last day of chemo and antibody for round 2 started today at 9am. So far we have gone without a hitch.
Before the chemo started and while Jesse was still snoozing the nurse practitioner on the floor this week stopped by. She is going to come back when Jesse is awake.
At the same time the body shop called about my car. They sent a guy to pickup the vehicle with a tow truck. I called the gate to let them know he was coming. The driver ended up at a different gate and got very confused. We finally got him straightened out, and rumor is my car will be fixed by tomorrow.
Then the nurses were in and out getting rates checked and rechecked. Then I think the most annoying volunteer to date stopped by. I know that she is doing good and helping out mankind, but talking in baby talk makes me want to do things that will cause me to end up in a jail cell. They come through and disrupt everything in their quest to “do good” and make their “hearts happy.”
I left while she was here because her voice was like nails on a chalkboard. I went to check on Mike. He started the process for donation of NK cells at 9:30. When I went down to see him at 10:15, they were still trying to get the line in him. He was taking it really well. And by 10:30am, the line was in one side.
I returned with coffee for Jesse as the volunteers were finishing up. I am sure they commented on how unfriendly I was in not opening up to them about everything Jesse has been through. I just wasn’t feeling like the baby talk in the whiny voice.
The nurse practitioner returned to listen to Jesse while she was awake. Then the nurse came back to check on Jesse because of the antibody. Jesse has been fairly whiny today. I know she might feel more tired because her hemoglobin is at 7.2.
We also pinpointed when the NK cells would be transfused. Rumor there is Saturday morning at 12:30am.
I need to get out of this funk I am in. I did workout this morning, but I still feel this uber frustration with being here. I so want to be at home, but this is where we need to be for Jesse. And I am stuffing it down so that Jesse doesn’t become more whiny and upset than she already is.
As the afternoon progressed, Jesse complained more of her leg, back of neck, and stomach hurting. We gave her ativan because we were saving the Benedryl for her blood transfusion. A little before 3pm, we gave her the Benedryl and Tylenol to transfuse the blood. Even after all that Jesse complained about her stomach. She has stopped complaining about the pain.
At 4pm she was able to get Zofran. At the same time she started to get the zofran, we were opening packages. She saw Peppermint Patties in the box and instantly wanted one even though complaining her stomach still hurt. And when I would let her have it, the water works began. She still didn’t get one. I wanted the zofran to get a chance to work.
A little after 4pm, Mike returned. He was a little woozy from the aphresis. I had checked on him through the day, and his re-entry vein had caused them to slow down the process. I was still impressed that it was done within 8 hours.
I left to get Mike and Jesse food. Jesse ate 3/4 of a cheeseburger, 1/2 a thing of fries, pretzels, and cheese-its. I am holding my breath that that will all stay down. Right now she is singing and playing on the couch in the room. Think that she got Java/ bottomless pit blood tonight. She does need to gain some weight because she weighs about 34.32 lbs today.
Tomorrow starts shot anxiety for Jesse. Because of potentially being out of here while undergoing several of the shots, I have asked that we start them at 6pm tomorrow night. We talked about doing it in the morning, but I was concerned about waking her up with that.
Tonight a volunteer stopped by to relieve Mike and/ or I, but we figured Jesse might not go for that. Plus she has been out of bed making Mike nervous because she wants to walk around. Then the happy cart stopped by leaving Jesse with a Polly Pocket. I think that whomever donated blood that Jesse got ate a ton of sugar and drank coffee like a champ.
Thank you Evelyn, Kathy, and Malakai for the food, coloring books, books, and pencils. Thank you Andrew, Addie, Aubrey, Avery, and Joy for the hat. Thank you Tommy, Debbie, and gang for the Hello Kitty coloring book and doll. Thank you Deb and Dale for the Tinker Bell book, book, and cards. Thank you Mrs Ro, Mrs Patty, NC family (and the for the McD’s gift card too), Cindy, Mike, and Biscuit for the cards.