A Year has passed since that night on November 3, 2010 when 2 doctors had the arduous task of telling us Jesse has a tumor. What a crazy year…
At this moment Jesse is 90 minutes from completing the antibody infusion. We’ll have 6 more days of shots.
Yesterday I left to head back to Williamsburg for a meeting and to spend time with Chris. Her last day at her preschool is tomorrow. I really appreciate everything that Walnut Hills Baptist Church Learning Center, Jessica Sherry, Liz Tyler, and the staff have done for us. They have gone above and beyond. I thank God for her Monkey Class teachers. They were a huge help for Chris at school when Jesse was first diagnosed.
Monday she will start at Norge Elementary. For my mother and other family, this will be much easier. Chris will get to ride the school bus and eat lunch at school. I can’t tell you how excited I am.
While I was at my meeting, the teacher from Norge called to meet with us. Since she couldn’t reach me, she tried my husband. They set up a meeting today at 2:30pm. When I was able to talk with Mike, I asked him if he wanted me to stay and meet with the teacher. His reply was that he didn’t want to have deal with traffic. I think he wanted to meet her teacher first.
I really do want to meet with her. I want to make sure that she understands I am trying to make sure Chris grows up without a chip on her shoulder from all of this. That is my biggest concern. Yes Jesse has gone through the medical part, but Chris has been as much in the emotional and mental part of this as Jesse has.
I was back her by 11:30am. Unfortunately they had moved Jesse back into room 315. I know it makes sense for staff purposes, but 3012 is nice (not 8B, but nice).
Jesse was still wearing her ladybug costume. The antibody infusion had just started. I found out from our nurse that when Jesse heard Dr Lowe was coming to see her, she insisted that Mike put her wings and antenna back on. She has had the costume washed since I was gone.
The resident stopped by. He told me that they will give her the rocefrin at 9am Friday. Yeah! It’s an hour infusion with an hour observation. Maybe we’ll be free by 11am 🙂
The oncology nurse had told me earlier that she was meeting with residents to go over discharge procedures. I asked her if she would add from me: Read the protocol (will save you trouble) and check medicines and time lines. Hope this means this guy was listening 🙂
This afternoon, we have just been waiting. Jesse is now sleeping, but I think she will wake up in a little bit. Our nurse can’t wait for her to wake up. He was ecstatic she was still in her costume.