I’m a little behind…. Being home with Jesse on an IV bag and other unexpected bodily functions is exhausting.
On Saturday, April 16, 2011, Jesse was released from CHKD. I was so thankful we were going home on Day 10 from her stem cell transplant versus having to remain inpatient for more time. By the time we left, Jesse was having bouts of depression from being in the hospital. Our doctor allowed her to leave because her ANC was above 2000 and had been for 3 days. One hour before we checked out, Jesse asked for a graham cracker. This was the first thing she had eaten in 4 days.
Sunday: Jesse still isn’t very interested in food or drink. She does eat a slice of processed turkey meat.
Monday: Jesse actually asks to eat a cereal bar while we are at clinic. I figured that she would need platelets and red blood transfused, but her counts are enough to not have the transfusions. Mike and I asked that she remain on the IV fluids until we returned to clinic on Thursday. Our concern was that she would get dehydrated… and then she would be back inpatient because of it.
Tuesday: I let her have Scooby Snacks (dog biscuit shaped graham crackers… yeah I know I’m setting her up to accidentally eat one of the dog biscuits… but hey she’s eaten dog food before) for breakfast.
Wednesday: Same breakfast, but so far today she has drunk far more than the other days… and ate 4 mini corn dogs and finished her corn. Hopefully tomorrow we can retire portable Fred (the IV bag). When she is on that she refuses to walk or even drag him behind her. She is still weak, but getting stronger every day.
Now we are in the 100 days of not being in public and people looking at me funny when I try to explain…