This morning Jesse and I made our usually trip to CHKD for Jesse to have her counts checked. For more than half the ride she rode with her head down. Only when I reassured her that we were coming home did she perk up. I really hope she forgets this last visit before we begin the antibody rounds. ( Although I am sure that will be traumatic since we will begin in the PICU…. I really hope that I am wrong.)
Our appointment was for 8am. Of course, I was in the parking deck at 7:12am. I sooo have time issues.
We checked in at the front desk, then went to the backdoor of the clinic and into isolation room 1.
While we waited for Jesse’s counts to come back, Jesse watched a movie and snacked on graham crackers all the while talking about what she wanted for dinner.
Jesse’s doctor has placed her on a medicine to increase her appetite. This should be interesting. He wants her to gain weight in getting ready for radiation.
As for her counts:
ANC: 968 ( this is lower than normal range, but par for the course after a stem cell transplant and stopping the neupogen.)
Red Blood: 8.6 (enough to not have a transfusion)
Platelets: 66 (This is great because they are coming up on their own signalling that her red and white blood cells should start increasing on their own)
They also counted another number. This was to see if she needed the hour and half infusion of a immune booster drug. Hers was above 500, so she didn’t need the infusion.
She has also been removed from the portable IV, giving her a little more freedom.
I pray that Jesse is doing well. I have a close friend that just beat cancer. I dont know you but I have been crying for the last 5 minutes because of sweet little Jesse and what she is going through.. and what your family must be going through. I have a 5 year old, 3 year old and 10 month old and I have been feeling so very exhausted lately from the day to day grind and this story has really made me realize how selfish I am being.. I need to cherish every moment! Just know that there are people all over the place rooting for Miss Jesse and your family.