What a day. What a weekend.
Not sure if the antibody and il-2 combination have turned Jesse bipolar or she’s just 3.
We came home Friday evening, which was great because we missed the traffic. Jesse stayed awake until 10pm. She napped earlier in the day… And that usually equals a later bed time.
Saturday, the girls played around the house. Jesse screaming and crying most of the day. Also claiming that she couldn’t walk because her legs hurt, then I’d catch her running… So not sure of the truth there.
Sunday, Mike had to work. And Jesse pulled the same stunt on Sunday.
I don’t know if this bipolar attitude comes from feeling crappy from the il-2 and antibody, being 3, or the attention from being the hospital for the last two weeks ( with a weekend off in between) and she’s coming down from the people high.
Monday in clinic her behavior was embarrassing. I am still really disgusted with her. Don’t worry she knows because she didn’t want to go home with me. All I was going to do was put her in her bed room for the remainder of the day. You can’t act right, you don’t deserve to be in public.
I really thought that some of this attitude stemmed from needing blood, but her counts are fantastic. Red blood 10.2, platelets 136, and ANC 2211.
But the more I think about it, Chris acted this way at 3, and I felt the same level of frustration and anger then. Chris spent a lot of time in her room, and she has turned out to be a great kid. Sure we have our moments, but she does listen.
I just need to get Jesse to learn that screaming and crying to get your way will not work.
This morning we started at 7:30am screaming for me to carry her out of bed. There is nothing wrong with her legs, nothing. She runs when she wants. She might be a little stiff in the morning, but she needs to get moving and work that out. 45 minutes she screamed. Finally she walked out of her room.
Later on she began screaming for something else. I don’t even remember now. I told her when she could tell me nicely, I’d consider it.
All of this is frustrating and disruptive. I have work that needs to be done, sleep that needs to be gotten, and exercise to catch up on.
It’s going to be a tough few months, but eventually through consistent consequences she will learn to behave as she should. Plus by the end of December maybe all the medicines will stop affecting her mood and only affect the tumor.
I did talk with a nurse who mentioned that the others who went through antibody treatment were a little moody. And I am sure that feeling like you have the flu for a few weeks every month plus the anger Accutane brings out just doesn’t help one’s mental state especially at an age where you can’t really figure out what is going on.
And speaking of Accutane, Jesse is less than thrilled I slather her in Aquaphore every night, but I can’t have those sores all over her again. Plus I am sure that me wanting to put sun blocker on her every time she steps outside isn’t going to help the anger level either.
Ah the terrible threes…