Jesse and I headed off to radiology this morning for the last test: bone scan.
We arrived at CHKD at 7 am (I was concerned that my afraid of the tunnel buddy was back at work, I was right). Jesse took one last swig of her tea. She couldn’t have any clear liquids after 7:30am.
At 8am, nuke med was ready to give Jesse the contrast to seep into her bones. This medicine takes 3 hours to get into her bones. While Jesse waited she made a face, and got to hang it next to the face made by a friend from clinic. Her friend’s face was an awesome picture of a little girl with no hair.
The sedation unit weighed Jesse (12.2kg), and we went to the Ultrasound waiting room to wait for 10am.
At 10am we returned to sedation. They completed their paper work. Jesse saw the sedation/ emergency room doctor. We were really lucky today and got my favorite sedation/ emergency room doctor. She remembers Jesse every time, gets straight to the point, and is so much fun! I like the other sedation/ emergency room doctors, but I connect with her better plus she called the oncology doctors one time and asked them to do a bone marrow ahead of schedule since Jesse was already sedated.
Jesse kept telling the nurse that she was ready, and we took her into the nuke med imagining room before she was asleep. I laid her on the special bed for the imaging machine, and left her to be photographed from head to toe. This was at 11am
The nurse mentioned it would take about 45 minutes to 1 hour. At 12:45pm, I do admit I was getting a little nervous.
At 1:15pm, the nurse found me in the MRI waiting room, and I went to see the still sleeping Jesse.
The nurse told me they did have to catheter her, and we have one episode of bad pee. But it doesn’t seem to be as painful as last time. They also told me that Jesse kept wiggling her toes, so they would have to up her precedex and take the picture again.
By 1:45pm, Jesse was awake enough for us to head out. She slept the entire ride home.
Tonight we received good news that her bone scan results were good. We are really excited with those results. 🙂
On Jan 17, we meet with her doctor to talk about where we go from here.
We are really excited to hear your GOOD NEWS. We hope and pray that she will continue with her progress and will make it to a ripe ‘old age’