Category Archives: Jesse Updates

And the number 1 ( We did A and 0 yesterday) Yesterday, Monday, Jesse was admitted to hydrate over night in preparation for chemo today. We were in our room by 3pm. I wouldn’t let Jesse go to the playroom because I feel this is setting a dangerous precedent for later in the stay when […]

Saturday, March 19 was an extremely exciting day for both of my girls.  Jesse stayed awake till 3 am ( Yeah red blood cells… better than any overly caffeinated drink out there) Chris awoke shortly after I did. And yes I did the flight of the bumble bee house halfway house cleaning routine. Because of […]

I didn’t sleep well the night before because I was worrying about Jesse’s bone marrow biopsy and how much she might hurt after the procedure ( yeah I’m good at needless worrying… really I am) We rolled out of here at 5:45am to be at clinic by 8:15am… I was there by 7… And that […]

Yesterday Jesse and I made the trip to CHKD to check her levels and start her testing for the high dose chemo/ stem cell transplant. I knew she needed platelets because she was bruising really easily… and where the doctors inserted the pic line for her stem cell harvest bruise reappeared. Her platelets were 6! […]

Having to decide about putting Jesse through surgery was not easy. Mike and my main objective was to completely agree with each other. When I talked with Uncle Jim, he suggested sitting down and writing out the pros and cons. This was an invaluable idea. Here is the list Pros Cons Remove some of the […]

On 4:30 Wednesday afternoon our phone rings. It’s Jesse’s doctor asking if we can move her appointment to Thursday instead of Friday. At first I figured that he had a meeting come up on Friday, and our nurse said no way am I calling people and rescheduling them. Then he went on to tell us […]

They are so glad were home. Hehe! No really they are. It’s fun to mess with them about going out, but have no fear Roxi will get even with me in the middle of the night!

During Round 5 in early February, Jesse and I decided to play with the video camera. We give you a little tour of her room at CHKD, and us cutting up. TV is only so entertaining to a 2 year old 🙂 ——– Please help us in the fight against cancer. Because of the love […]

Jesse’s tumor plus some of her medicines make going number 2 without Miralax exciting.  We have relied very heavily on Miralax to help.     If you would like to help us in finding a cure, please visit our St Baldricks’ Event

This morning Jesse and I made the trip to CHKD to find out if she would have surgery or start round 6 of chemo. Part of me wanted her to have surgery to get that evil thing out. The other half didn’t want to put her through that trauma again. Even though Mike said he […]