Day 80 Yesterday went much smoother. Jesse had a school appointment, social worker appointment, and dental visit. She never left the isolation area of the hospital. At 4:30pm, I gave her the shot of il-2 and GM-CSF. And at 9, her temperature reached 100.2. I did freak a tad, but took it an hour later. […]
Category Archives: Round Two
Day 79 at St Jude
Totally over this place. I know they do wonderful things in saving people’s lives… but I am still over it. I am tired of not being heard. I am tired of it being assumed I am divorced and not working. I am tired of the internet that fails to work. I know they do a […]
Day 78 at St Jude
Mike arrived around 7pm last night. He mentioned the plane ride from Charlotte to Memphis was like riding a roller coaster. Jesse was so excited to see him. He arrived at a good time. It was pouring freezing rain, mixed with lightening and thunder, and wind. This morning, Mike was due at St Jude at […]
Day 76 – 77 at St Jude
I really didn’t want to get up this morning. But Jesse needed to be at the Medicine Room by 9am to start chemo. This is the last day of treatment for Round 4. Jesse really didn’t want to be up either. We arrived at 9am and the clinician promptly fetched us from the isolation doors. […]
Day 75 at St Jude
At 3:30am, my alarm went off to give Jesse her meropenem. Luckily tonight is the last dose of that. At 4, I took the meropenem off and hooked up the zofran eclipse. I set my alarm to make sure I was awake at 4:30 to remove it. I woke up at 5:40 because I slept […]
Day 73 – 74 at St Jude
It has come to my attention that I had a misprint on the site about the Chili’s in Williamsburg. If I every state that something is better in Memphis, that is a misprint. The Chili’s in Williamsburg is way better. Yesterday Jesse and I had to be here by 9am. Luckily they took is right […]
Day 72 at St Jude
We started the day early as Mike and Chris had to leave and fly back home. Jesse stayed awake for a bit after they left. I was able to get her to fall back asleep until 7:20 when we walked over. We were the first to reach the isolation doors. A few minutes later another […]
Day 71 at St Jude
Today started at 7:15am with walking to St Jude. Mike suggested driving over. Maybe we should have since we needed to leave for the outside appointment with urology, but I said nah let’s walk it. We arrived at the isolation doors before 7:30am. There was another family waiting. She asked what Jesse had. Said they’d […]
Day 68 -70 at St Jude
Day 68-70 Mike and Chris arrived about 12:30am. Jesse was barely staying awake, but she really wanted to see them. It is so good to all be together in the same space. The girls went to bed, and Mike and I sat up talking for awhile. The Grizzlies house is nice in that it has […]
Day 67 at St Jude
Jesse woke at 7:30am, and stayed up. She is really excited about her dad and sister arriving tonight. I am just praying that we’ll stay on track for the 4th round of chemo. At 9am, we walked over to St Jude. It is so convenient being at the Grizzlies House. Jesse actually wanted to walk […]