Day 3 continued and start of Day 4 at St Jude

Around 10pm CT, I took Jesse’s temperature. It was 101.1 F. Here a fever is 100.9 or 100.4 for an hour.

I called their Medicine Room, which is the equivalent of an Emergency Room.

I figured they would remove the caps, take blood samples to make sure she had no infection, and maybe admit her. I didn’t tell her that though, because she was worrying about coming back to the Grizzlies House.

When we arrived I asked them to wear masks because I thought the caps were coming off the CVL. I was wrong. Here they take the blood samples and leave the caps.

They gave Jesse a dose of Rocefrin through the IV, and sent us back to the Grizzlies House.

December 19, 2013

I have been trying to give Jesse morphine every 4 hours to keep her pain regulated. I had been trying every 5 hours… probably not the best plan.

At 2:19AM CT I gave her 2ml (4mg). By 5:30AM CT she was awake and crying from the pain. I gave her another 2mls and took her temperature: 102.3 F.

I called the Medicine Room, and the doctor okayed her having Tylenol since we’d take cultures.

Jesse woke on her own at 8AM CT. She actually wanted to get out of the bed and walk into the other room of our suite to look for Grandma. This last week she has not wanted to walk anywhere.

Today we head over at 12:20PM CT for our first appointment. She has to remain NPO until after 2PM so she can prove to them she can do a CT Scan without sedation.

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2 Comments

  1. Soosan, just know that you and Jesse are in our daily prayers. Sending you positive energy and thoughts. We love you.
    Jesse and Sandy

  2. Love to you…many hugs to Jesse…we miss her so much here at school and I’m praying every minute of every day…

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