Day 38 at St Jude

This morning Jesse wasn’t interested in eating. I am not sure if her stomach hurt from chemo or from nervousness. Today was her first day in her new class.

We went over to St Jude a little early to get her mail. So nice to have my vehicle back 🙂

Class started at 10am and lasted until 11am. There looked to be 3 or 4 other kids in her class. I could hear the teacher ask them to write “mitten.” They talked about snow, measured a polar bear paw, and read Froggy. This version of Froggy, he made a cake.

Jesse was so excited about reading Froggy that all the way home she talked about the original one where he forgets his underpants. It’s a cute book if you haven’t had the chance to read it, I suggest you do 🙂

Back at RMH, Jesse wanted nutella on English toast for lunch. Around 2:30pm, she mentioned to me that her stomach was hurting. I went ahead and gave her Benedryl along with her other 2 medicines scheduled for that time.

At 3pm, I put the ethanol/ placebo in Jesse’s lines to sit for 2 hours.

Around 3:30pm, Jesse told me she was hungry again. We went downstairs and she devoured a can of chicken noodle soup. Luckily at 4pm she got zofran, so I (knock on wood) didn’t hear her mention her stomach hurting for a couple of hours. (jinxed myself… no more acidic foods might be the best goal)

Also at 4pm, it was time for her shot. Today she only gets one: GM-CSF. And today she screamed impressively. The evil side of me says I should tape the screams for Halloween. Yes I know bad, bad joke. I hate giving her the shot, but she needs them to rev up her immune system.

Jesse watched both Scooby Doo DVDs after the shot. She figured out the end of one of them before it was revealed. She was very disgusted that I didn’t realize the villain was wearing the same clothes as the sweet grandma. Thank you Keith, Tammy, Brody, and Spencer for the DVDs, stickers, Spiral art, and lotion and body wash for me. They smell great and Jesse even complimented me on not stinking 🙂

Thank you Pat and Dallas for the hat, Frozen book, stickers, monkey straw, teddy bear, and lotion for me. Jesse was really excited about the book. She loves the wand with it 🙂 The lotion is extremely wonderful to have. I have been washing my hands so much they are cracking.

Thank you Meme and Papa for the “Jesse” doll with hat and blanket, plus Jesse’s matching hat, blanket, and pillow case. Thank you for the paper dolls, stickers, book, and money. Jesse loved the hat and doll. She even commented on the doll having freckles too. 🙂

Thank you Gary & Andrea for your support.

Thank you Sunshine Fund Family for the gift card.

Thank you Nancy & Jimmy for the card and prayers. 🙂

Thank you Lyman and Debbie for your donation to St Jude.

Tonight we went down for dinner put on by a group raising money for the RMH. Jesse wanted the lasagna, but it didn’t stay down long. Luckily it stayed down long enough for me to make a potato and get her back to the room.

While I was talking to Mike tonight, Jesse asked in her sleep if she could just be finished. Comments like that make me nervous. I asked her, “Finished with what?” “This cancer.”

Tomorrow I think will be a long day at St Jude. From her paleness and way she talks about being tired, her hemoglobin has got to be low. And I am positive that she’ll be close to needing platelets.