I hate the internet here. It’s like a double punishment. “Sorry your child has cancer, you want to get on the internet and attempt to be productive… sorry we had to take a break to laugh and look down on you for wanting to keep your house.” RMH won’t let you get on certain sites and doesn’t work well with ipads. At St Jude, the internet is up and down, up and down. I am so freaking frustrated. I need to work and I can’t get online to get a freaking thing done. And calling the technical support people here just leads to a “go out in the hall.” Yeah that’s effective.
On Saturday, Jesse and I hung around RMH. We went down for the lunch and bingo. Jesse played till she won, then she was done. There were 2 old ladies down there. Each had 4 cards. I’ve noticed these two around the house and manners aren’t their strong suit.
We returned to the room to relax. Jesse was able to keep down all the food she ate. And because she was feeling better, she had several rounds of “I want to go home.” I want to go home too. I am starting to not this place. Plus I need some time to recharge, and I can’t get it. I also have discovered that I don’t like sharing a kitchen with a bunch of people I don’t know. And that I have the worst timing. I seem to always catch the dishwasher when it needs to be emptied. And actually I have been trying to think of foods I can make that don’t require me to use their dishes. Petty I know, but I’m starting to loose it.
Sunday, Jesse and I ran to Kroger for some groceries. Then we reorganized our room at RMH. About 9:15, I noticed Jesse felt warm even though she was complaining about being cold. I took her temperature, 101.1. I called the Medicine Room, and they requested I bring her over. Jesse was yelling at me that she didn’t want to go. I didn’t either, but we needed to see what was going on.
At the Medicine Room, Jesse’s temperature had risen to 101.3. They cultured her lines and asked for a sterile urine collection. Then they gave Jesse meropenem. Within an hour, her temperature had dropped to 99.7. The urine was cloudy. Because of the cloudiness, the resident (who did her med school at EVMS) admitted Jesse. Around 1am, we were finally settled upstairs.
Today, the nurse practitioner has come in to tell us the cultures show no infection in the blood. The urine does show something. Until the cultures come back, we won’t know. I have also been talking to them about one of Jesse’s veneers. I am not sure if she has knocked it loose or the tooth underneath is getting wiggly.
After she left, the Ethel study nurse stopped by to see if we needed anything. We are good for the moment. Then the nutritionist stopped by. Luckily she just commented on Jesse maintaining her weight and left. She did offer to order anything that Jesse wanted. I should have asked for McDonald’s for Jesse. She absolutely has decided that the food here is horrid.
And maybe if the stinking internet worked better I wouldn’t feel so frustrated. I am getting to the point where I can’t stand this place and Memphis.
Now we are just waiting till tomorrow to get out. Supposedly they will use Jesse GM-CSF vial I have at RMH, but no one has come to tell me for sure. It was a case of let me talk to the doctor to see if we really have to give the shot. I am going to have to go to RMH to get clothes and a shower anyway. Plus food that Jesse will eat..