My mom mentioned today that the next two to three weeks are the peak season for the flu. If this is the case this year, Jesse’s primary oncologist is home sick with it. I hope he feels better soon.
Since he was out sick, we will return next Wednesday to meet with him about the future plans. I am very comfortable with Wednesday because by then he will be over the flu. Sorry Doc. We love and think you’re great, but I can wait until after the flu has passed to see you 🙂 As I am sure he’d feel the same way if one of us had the flu.
Plus this gives us an extra week to think of anything we want to ask about Jesse’s neuroblastoma and what we can do to help her.
Mike and I did make the trip with Jesse down to CHKD before we found out, but that was ok. Jesse has a rash every where they used the orange cleaning solution in the or. I know it has a name, but the name has escaped me. Luckily one of the other doctors was able to take a look at Jesse. He feels that this is a contact dermatitis starting from an allergy maybe to the tape we have been using for over a year. Then the orange stuff (I will think of the right name around 3 am 🙂 ) exasperated the situation.
In other exciting news: Jesse gets to take a full out bath tonight!! What she hasn’t had a bath? No she hasn’t. The CVL could not get wet because she could end up with an infection. Yes they have an aqua patch, but it was so large on Jesse that it would end up under an arm pit. Very uncomfortable to pull off. So we’d gotten to where we’d wipe her down.
When we told her she could have a bath, Jesse has been really excited. She can’t wait to be like her big sister. She even asked if she could take a shower. That one will have to wait until the stitches from her CVL removal have healed.
It is amazing to me how I thought Jesse was used to that CVL, when really she wasn’t. Since that line has been out, she has run everywhere. The limp Mike and I were worried about is gone. She is back to being the kid I knew in July of 2010. I pray she always feels as good as she seems to feel today.