To recap where we have been. In October, we started traveling to Hershey Medical Center, which is about 4 to 5 hours from our home. Jesse was not eligible for the DFMO trail because she still has active disease. In November, they biopsed the disease. And we began a trial of 4 different drugs that […]
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December 13 – 21, 2014
Week before last Jesse asked me about what upstairs at Hershey Medical looked like. Saturday night (December 13) we got the opportunity to find out. We started the day with plans to go to Hershey Chocolate Factory and spend time together as a family. First we went to check out the Thousand Trails 15 minutes […]
December 12, 2014
Today was luckily more of the same. Jesse mentioned that her stomach hurt about 1pm. I gave her an Ativan, and she was good to annoy me. At least she well enough to drive me crazy. I saw the family from last night. I apologized to them if Jesse caused trouble. Turns out the little […]
December 11, 2014
Tomorrow Jesse would have gone to the Nutcracker. She was really excited to go because Chris went last year. I haven’t reminded her because I don’t want to make her upset. The last two days have been pretty boring, luckily. And we are both suffering some major homesickness. You’d think that having spent almost 8 […]
December 9, 2014
I excel at being behind in posting. My last post was a total rant against RMH… and probably not polite to share. After giving us a ton of grief about not having a room if we went home, Ronald McDonald had a room for us. I was so glad to get out of here last […]
October 28, 2014
Jesse woke with a start and a scream at 6:30am. She often has nightmares, but halfway through the scream she stopped. She then told me she dream she didn’t have to have the bone marrow biopsy (which was scheduled for that day), and she went home. At the time, I told her we’d be home […]
October 27, 2014
Yes I know totally delinquent in posting. I honestly had a little breakdown. We got home and save for going to clinic, we got to pretend that Jesse was like everyone else. The last scans from St Jude show the light has stopped appearing on the MIBG. As the doctor put it, “This doesn’t mean […]
July 12, 2014
I seem to be excelling at the weekly updates as of late, but we really have not had too much happening. We get up, go to St Jude, get radiation, and return… for the most part. Monday, the line nurse came to see us early. She removed the gauze from Jesse’s port site. They were […]
July 6, 2014
Yes I am easily distracted on getting posts up. Hard to write when Jesse is saying “I’m hungry” every 5 minutes. She takes 2 bites of things, then puts it down. Combine that with Chris’ whining about this and that, it gets hard to think. No worries, I will break her of that horrid habit. […]
July 1, 2014
On Sunday, over 6 inches of rain fell in Memphis. Luckily in our area there was no flooding, but other areas were not so fortunate. Monday, the repairman came to look at the fridge. He thinks the fan is blown, and asked me to listen for it to cut on during the day. The temperature […]