July 12, 2014

I seem to be excelling at the weekly updates as of late, but we really have not had too much happening. We get up, go to St Jude, get radiation, and return… for the most part. Monday, the line nurse came to see us early. She removed the gauze from Jesse’s port site. They were […]

July 6, 2014

Yes I am easily distracted on getting posts up. Hard to write when Jesse is saying “I’m hungry” every 5 minutes. She takes 2 bites of things, then puts it down. Combine that with Chris’ whining about this and that, it gets hard to think. No worries, I will break her of that horrid habit. […]

July 1, 2014

On Sunday, over 6 inches of rain fell in Memphis. Luckily in our area there was no flooding, but other areas were not so fortunate. Monday, the repairman came to look at the fridge. He thinks the fan is blown, and asked me to listen for it to cut on during the day. The temperature […]

Week of June 23

I woke at 4:50am to the sound of Cummings diesel engine. Interesting enough it was the guy across from us. His dog had wandered over to our camp last night. He was obviously very uncomfortable… which made me nervous. He had made the comment that he was packing last night to leave. I figured that […]

June 22

We left St Jude on June 16 to head home for our camper. I know I have left many people in suspense over Jesse’s scans. I am sorry for the delay. I had many things to get completed when we got home sine we will be in Memphis for one more month. On June 16th, […]

June 13 & 14

June 13 2014 Jesse woke up during the night to use the bathroom. I woke up with her, but unlike Jesse, I stayed awake for two hours afterwards. Around 7, I woke up realizing that I had slept through 2 of my alarms. Yeah. Jesse slept till 8:15. When she woke, she was ravenous. And […]

June 12 2014

So behind in updating… and have lost count of days… I decided to take some time off from posting because I was swamped with work, kids, house, and cleaning. Plus we were in a period of recovery with thankfully not much happening. And I was paranoid that I might jinx Jesse into a stay in […]

Day 141 – 146

Day 141 We started the day at 7:30. I had requested that Jesse’s labs be checked on Tuesday in case she needed platelets or blood. We arrived at the isolation door at a little after 8. Another family was inside the holding area waiting. I called D clinic since we didn’t see the isolation nurse. […]

Day 139-140

Day 139 Mike arrived about 11am. Jesse was so excited to see him. The hospitalist told us Jesse had 75 platelets, 10.7 red blood, and 2.6 white blood count. Her weight was 14.3kg. At 12:30pm, we started the last dose of antibody. For a day here, it was really mild. And by 6pm, we were […]