Blog Archives

July 9 – 13 and Passing

July 9, 2015 Jesse and I arrived in Richmond at 8:45am. The flight was luckily uneventful. She spent the day cuddling with her dad. And she kept saying she was so happy to be home. July 10, 2015 In the

Posted in CHKD, Jesse Updates

July 8, 2015

At 8 am PDT, Jesse and I headed for the hospital. Her labs were drawn, and we started our waiting for the results. The results are not good. Her bilirubin total has jumped to 6.9. To put it bluntly, her

Posted in Jesse Updates, Seattle

July 5 – 7, 2015

July 5, 2015 Jesse’s chemo completed at 3:30 pm. She still had 4 hours of hydration to help her body get rid of the excess chemo. Plus we needed her creatinine to come down. If it was .7, this might

Posted in Jesse Updates, Seattle

July 4 & 5, 2015

July 4, 2015 I woke at 7 am to get ready for Jesse inpatient admission for cyclophospormide (cytoxan) and fludarabine. At 8 am, the nurse called to say they were ready. I finished cleaning up our room, dressed Jesse, gathered

Posted in Jesse Updates, Seattle

June 19 thru July 3, 2015

Friday, June 19, 2015 Mike and I decided to take the girls camping for the weekend. We had heard nothing from Seattle about Jesse’s t-cells. At 6pm, I received an email with a tentative schedule. They would need us to

Posted in Seattle

June 13, 2015

Since returning from Seattle, Jesse started chemo last week. We also put her back on gabapentin to help with the pain. During this week, her pain has dramatically decreased. In fact her leg isn’t hurting, and her back has dropped

Posted in CHKD

June 2, 2015

Jesse and I left late this morning for clinic because we wanted to put Chris, Emileigh, and Landan on the bus. And we didn’t have to be there long. We arrived at 10:30, and left by 1:30pm. While Mike and

Posted in CHKD

May 27 – June 1, 2015

May 27, 2015 Last night Jesse waited me out to go to sleep. I kept telling her to go ahead while I finished up laundry, but she was determined to fall asleep when I did. At 9:30pm, I took her

Posted in Seattle

May 26, 2015

Jesse had a really hard time getting comfortable last night to go to sleep. And this morning she was complaining of pain in her right femur and both hips. During the day that pain has now migrated back to the

Posted in Seattle

May 25, 2015

Yes I have not posted in quite sometime. We have been busy and I have been a tad lazy when it comes to the blog. Horrible. Since December we have been traveling back and forth between Hershey, PA; home; and

Posted in Seattle