Author Archives: admin

I really didn’t want to get up this morning. But Jesse needed to be at the Medicine Room by 9am to start chemo. This is the last day of treatment for Round 4. Jesse really didn’t want to be up either. We arrived at 9am and the clinician promptly fetched us from the isolation doors. […]

At 3:30am, my alarm went off to give Jesse her meropenem. Luckily tonight is the last dose of that. At 4, I took the meropenem off and hooked up the zofran eclipse. I set my alarm to make sure I was awake at 4:30 to remove it. I woke up at 5:40 because I slept […]

It has come to my attention that I had a misprint on the site about the Chili’s in Williamsburg. If I every state that something is better in Memphis, that is a misprint. The Chili’s in Williamsburg is way better. Yesterday Jesse and I had to be here by 9am. Luckily they took is right […]

We started the day early as Mike and Chris had to leave and fly back home. Jesse stayed awake for a bit after they left. I was able to get her to fall back asleep until 7:20 when we walked over. We were the first to reach the isolation doors. A few minutes later another […]

Today started at 7:15am with walking to St Jude. Mike suggested driving over. Maybe we should have since we needed to leave for the outside appointment with urology, but I said nah let’s walk it. We arrived at the isolation doors before 7:30am. There was another family waiting. She asked what Jesse had. Said they’d […]

Day 68-70 Mike and Chris arrived about 12:30am. Jesse was barely staying awake, but she really wanted to see them. It is so good to all be together in the same space. The girls went to bed, and Mike and I sat up talking for awhile. The Grizzlies house is nice in that it has […]

Jesse woke at 7:30am, and stayed up. She is really excited about her dad and sister arriving tonight. I am just praying that we’ll stay on track for the 4th round of chemo. At 9am, we walked over to St Jude. It is so convenient being at the Grizzlies House. Jesse actually wanted to walk […]

I woke up at 2am, hooked up Jesse’s meropenem. Then I went back to sleep until my alarm sounded at 2:30am to take the eclipse ball off. I also gave her zofran at that time to keep her on schedule with that. At 8:30 our phone rang to let us know we didn’t have to […]

The doctors came in around 2pm yesterday saying what infectious disease has been saying. Until we know what this infection is, they can’t decide on a plan. I waited till after Jesse got her shot, then ran to RMH to grab a shower, clothes, and food for us. I was gone for 30 minutes when […]

I hate the internet here. It’s like a double punishment. “Sorry your child has cancer, you want to get on the internet and attempt to be productive… sorry we had to take a break to laugh and look down on you for wanting to keep your house.” RMH won’t let you get on certain sites […]