For how I feel. I’ll get to why in a moment.
Jesse’s antibody finished at 10:30pm Thursday night. She did spike a fever, so the nurse cultured her caps around 11pm. At 1am, they moved us up to 811, the room we spent three weeks in for stem cell transplant.
After a fitful night sleep, I awoke at 8. Jesse slept until 11am, when I woke her up for tape change. I think that was the easiest tape change I’ve had with her. She only briefly screamed when I did the cloroprep.
At 12:50pm the il-2 was complete. Do we get to leave at that time? No that would be too polite especially since she has been here since 8 am last Monday morning, and spent the week before here. And it’s not like I don’t have a 2+ hour drive due to traffic and work to do.
The reason we have to stay is because around 8 am she received an antibiotic, and they don’t want to discharge her until they give her a dose of rocefrin. And since rocefrin is in the same family as the first antibiotic, they can’t give it to her until 5 pm.
I am so glad that the residents think I have nothing else to do, but waste 4 hours waiting for a drug. They should have looked at her chart and figured out how to give her the rocefrin when her il-2 was done.
The nurse was very nice, and talked with them about moving the time up. So we get the rocefrin at 3pm. Jesse and I could have been home by 3pm…
When the senior resident explained it to me ( as if I was a moron), she kept carrying on about her line. The cultures from her caps won’t come back for 48 hours and she won’t be protected after 24. I mentioned that we are bacterium and was basically told it was just there for protection and served no other purpose.
So we might get a call at 11pm Saturday to come back ( not really fevers are part of the antibody and had the “resident” read the protocol instead of knowing it all… She’d know that)
In fact I learned that the residents don’t want Jesse to go home because of the fever. Which protocol is if you have a fever and ANC, you get rocefrin and go home.
I am over residents. I know they need to learn, but I am over the hassle of having to bring them up to speed… Then dealing with the ones who think they know it all. And think that I don’t work or have another child that needs my attention. I’m tired of being treated like my time isn’t valuable by the health care system.
I was so angry that when I talked to Mike I lost it. Jesse has spent 5 days in this prison… If they were on her side, they would be making efforts to get her out of here and not hold her.
At least while we were waiting, Elmo stopped by. Jesse really enjoyed interacting with Elmo.
So back to molding…..