Yesterday was crazy with Jesse getting sprung. Medicines to get, stuff to pack, waiting on discharge papers. The transfusion went very well. I was trying to stay awake, but at almost 12am I woke up with the nurse trying to figure out why the lead wasn’t working like she wanted. A few minutes later 4 […]
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Day 33 at St Jude
Last night Jesse had a rough night. The nurses had been coming in every 2 hours to get her to go to the bathroom. But last night they did not. And even though they didn’t Jesse was up every 2 hours going. At 1:55am the fire alarm woke Mike and I up. I think it […]
Day 32 at St Jude
Jesse’s last day of chemo and antibody for round 2 started today at 9am. So far we have gone without a hitch. Before the chemo started and while Jesse was still snoozing the nurse practitioner on the floor this week stopped by. She is going to come back when Jesse is awake. At the same […]
Day 31 at St Jude
I slept later than I had meant to this morning. And I have discovered that if I want a workout and shower, I must be up by 6am. Because by 8am, I can just forget it. Good thing I shaved my head. No greasy hair and no bed head. I am so over the in […]
Day 30 at St Jude
I have spent most of the day fighting with my internet access in between all the important things that I should be doing instead. Crossing my fingers that maybe, just maybe I have it fixed tonight. And I don’t. I keep seeing a great signal, but the internet connection from my computer says limited access […]
Day 29 at St Jude
Today Jesse started round 2 of the antibody. At 9am, the nurses started the chemo. By 10am, she was starting her antibody. Within 30 minutes Jesse was complaining of neck pain. We upped her morphine, but this did very little for the pain. Over the next four hours, the nurses and I bounced different pain […]
Day 26 thru 28 at St Jude
The internet at the RMH bites and the one here is acting up with my computer :(. For some reason it blocks my access to Jesse’s site. I do have a hot spot, but Friday it decided not to work. I miss my iphone horribly. And Saturday, we were running around so I didn’t even […]
Day 25 at St Jude
Thank you everyone for the positive thoughts and prayers. 🙂 Since the car was dead and I realized I didn’t have flushes to do Jesse’s antibiotic, Jesse and I were on the shuttle by 7am. We didn’t really have to be at sedation in Chili’s Care Center until 7:45, but I needed to get that […]
Day 24 at St Jude
Sorry yesterday went berserk really quickly and by the time I knew it, it was 1am CT the next day. Jesse and I both were up at 5:30am for some reason. I think her need to go to the bathroom helped her be up. That’s fine with me, at least she is going 🙂 And […]
Day 23 at St Jude
We woke up to the news this morning that Jesse’s ANC was at 700. Woo-hoo! Now we need to get to 2000 to stop the GM-CSF shot. When we stop that shot, it might cause her ANC to drop again, but that will give her a little break between rounds. The judgmental resident was back […]