Author Archives: admin

This morning I woke before the resident came around. I don’t care for this one at all. She seemed surprised that I was awake this morning when she came in. After not telling me anything new, she was gone. Jesse slept until around 9:30am when I woke her up giving her medicine. She is getting […]

Last night Jesse spiked a fever of 102.1. The nurse and I think it was from the IL-2. This is the last shot for this round. After some tylenol, Jesse felt much better and wanted to eat. She also wanted to take Fred the IV pole for a walk. We walked down to the first […]

Around 10pm last night, something clicked inside Jesse. She wanted to play and was wide awake. Plus she was hungry. We face timed with family in North Carolina around 1am. A little after that Jesse was ready to lay down. She has been trying to avoid spending time in that bed, and I don’t blame […]

Last night Jesse started the “Ethel” ethanol study. For her white line .5ml of fluid was put in her lumin and left for 2 hours. To make sure Jesse was ok, her vitals were taken ever 30 minutes. After 2 hours, the fluid was removed. New fluid (.6ml because the red lumin is larger in […]

Last night we had a nurse in training and her know-all-better-than-you-don’t-have-kids trainer… I know they need to learn, but there is something that makes me ubberly nervous with them involved. I know there are those out there that would say just request her not be your nurse. Yeah done that before… here’s how it works: […]

This morning I woke up to learn that Jesse has an infection in her CVL. First one of those I can remember us ever having, even with the last CVL. The stain right now is graham negative; meaning that it is not staph or strep. And until tomorrow, we don’t really know what it is. […]

In 3 hours Central Time, 2014 will be here. As we close out the year, Jesse is decorating her fireman’s hat she got today. She has been busy adding stickers for about 30 minutes. She has explained every sticker she has placed. She also has not had a nap at all. Normally Jesse doesn’t nap […]

Flurries here today. Crazy that you miss so much of the weather being trapped in here. It wasn’t until a nurse told us that we knew it was snowing. Also crazy that everyone hits your hospital room at about the same time… feel a little overwhelmed by it at times. Jesse woke me at 5am […]

In the middle of the night, Jesse needed to go #1. As I was getting her up, I noticed that her left nephrostomy tube was tinged red. Mike and I called the nurse. She called the doctor, and he requested a urinary analysis. He mentioned that the tube could have shifted in the kidney. Or […]

Mike and Christine arrived a little after 8pm CT last night. Jesse woke briefly to see them, and then was out again. Mike told me about a very nice lady that helped them on the plane. Her sister had been a patient at St. Jude. I am very grateful for her help and kindness. It […]