I forgot to post yesterday. I was wiped by the time we finished everything. December 17, 2013 Today back in Williamsburg, Jesse should have been having her tonsils out and allergy testing. Instead they put the Double Lumen Hickman Line back into her body around 9:30am CT (still trying to get used to central time […]
Author Archives: admin
Potential for a St Jude Study
Thursday, December 12, 2013 We meet with Jesse’s oncologist at CHKD. The news is not good. Jesse’s neuroblastoma has reoccurred. Our doctor gave us three choices: Do chemo at CHKD Undergo MIBG therapy: Here they take the MIBG radioactive isotope, make it more radioactive, inject in Jesse’s body, and she has to sit in a […]
New Mass
Let me start at the beginning… so I don’t get too confused myself. I haven’t updated in awhile because honestly there was nothing to update. Jesse went for scans in July and came back showing no change. We rejoiced, camped some more, and prepared for her first year of full time school. September – Back […]
Update for April 2013
I haven’t posted in awhile because well nothing has been really going on. Jesse has been going to school, and not wanting to go. My husband has gone back to doing landscaping on the side. Christine, Jesse’s sister, had her tonsils and adenoids taken out (what fun that has been, but they were the size […]
We don’t come back until July!
Today we found out the results of Jesse’s scans…. and since there is no change, we don’t go back until July. 6 whole months… And when she does go for scans next time, it will only be a CT Scan. A CT scan on the new machine that will take 5 minutes… with contrast that […]
Two Days of Tests Done…
Wednesday, January 16, 2013 Jesse and I made the approximately 50 mile one way drive to CHKD in the rain. It’s been raining here for 4 days now… I would say that I am going to need an ark, but well they are calling for snow tonight… I am so excited (not). We started by […]
2 Years Ago
Wow… it’s amazing to think that 2 years ago today Mike and I did one of the hardest things ever. One that created the image of a 2 year old girl screaming for me as they took her through the double doors into surgery. Her not know what awaited her… and her father and I […]
Scan Time Again
Last week the phone calls started to remind me of Jesse’s visit to CHKD for her 3 month tumor scans. The first one came on Thursday from sedation. They asked questions about Jesse’s health and treated me like we’ve never done the sedation before. They also informed me that they have a new policy of […]
Trip To WVEC
Jesse, Heather (our St. Baldrick’s VEO), and I made the trip to WVEC 13 today to promote our events. If you haven’t signed up, please see the links at the top for what we have going on. Here is the video
Camping
This weekend we took the girls camping. We’ve lived in a bubble long enough. With that said, we didn’t go far, just 5 minutes away as a trial run. I let Mike and the girls leave ahead of me so I could complete some work. I left here at 2… in route Mike called me […]