Author Archives: admin

A Year has passed since that night on November 3, 2010 when 2 doctors had the arduous task of telling us Jesse has a tumor. What a crazy year… At this moment Jesse is 90 minutes from completing the antibody infusion. We’ll have 6 more days of shots. Yesterday I left to head back to Williamsburg […]

PICU here at CHKD is hopping. I really hope that all the kids that are having to stay will be okay. I have seen far more teary eyed parents in 2 days than I have seen in other Antibody Rounds. Jesse slept until 7am when we woke her because her blood pressure was really low […]

We have been very busy these last three weeks. Jesse and I have made the clinic trip at least once a week. During the 2nd week visit, I told her oncologist I was over dealing with residents when he told me that a resident was going to see Jesse first in clinic. He reassured me […]

This is the one I was after because it has Mike with the hand print on his forehead 🙂

For how I feel. I’ll get to why in a moment. Jesse’s antibody finished at 10:30pm Thursday night. She did spike a fever, so the nurse cultured her caps around 11pm. At 1am, they moved us up to 811, the room we spent three weeks in for stem cell transplant. After a fitful night sleep, […]

For Jesse it has been a long 2 weeks. On September 26, we began the il-2 infusion. I stayed with her until Thursday last week. The il-2 infusion last 96 hours, and for Jesse was a pretty quiet event. She finished at 5:30 on Friday evening. And since she needed a transfusion, she and Mike […]

And Jesse gets to put a hand print on a lab coat. This is from Wavy TV 10. Mike is holding her 🙂 Hyundai drives $100K donation to CHKD: wavy.com

We began round 2 of the il-2 on Monday. Clinic was very different that day. Jesse’s new CVL fully cooperated, and we had her labs drawn in no time. Her ANC came back around 3000 and her other counts were great. Tonight, she is starting to run a fever. So far it has been around 37.6 […]

Thursday morning began with the alarm clocks ringing back to back, and me realizing Mike had fallen asleep on the couch watching the new HD baseball channel his grandad showed him. (that is quite the norm, and when he does fall asleep on the couch I don’t wake him) He got up and took Chris […]

Today when Jesse and I went for labs the decision was made to move the surgery up to tomorrow. We had to stick her arm to get labs. Her numbers came back great. In preparation she had her peripheral veins checked via ultrasound to make sure there were no clots.  We also met with her […]