Author Archives: admin

Heaven help her and me. I need to learn some patience anyway. ( And I am so bummed because I really wanted Jesse to get to have time with Mrs Trish and Mrs Jeannie) When we were in clinic yesterday, the nurse mentioned that her immunizations where no longer up to date because she had […]

This morning Jesse and I made our usually trip to CHKD for Jesse to have her counts checked. For more than half the ride she rode with her head down. Only when I reassured her that we were coming home did she perk up. I really hope she forgets this last visit before we begin […]

Trying to explain Jesse’s 100 days of contact precaution… has been a little difficult for me. I am hoping that by writing it out here, it will help me to explain it clearer. ( I have left some very confused people in my wake 🙁  ) Until July 14th, Jesse has to follow very special […]

I’m a little behind…. Being home with Jesse on an IV bag and other unexpected bodily functions is exhausting. On Saturday, April 16, 2011, Jesse was released from CHKD. I was so thankful we were going  home on Day 10 from her stem cell transplant versus having to remain inpatient for more time. By the […]

Jesse’s ANC is 1600!!!! Her platelets are a little low, and she will receive a transfusion. Her red blood cells are maintaining, which surprises me. I really figured that she’d need red blood. And she might before we are able to go home. My goal today is to see if I can get her to […]

And it’s time to hopefully get off the morphine because whew what an attitude! On Sunday, my favorite IV lady returned to TPA Jesse’s red line because there was a clot in the line preventing fluid from traveling through. Luckily that went very smoothly, and the line was available for use within an hour and […]

The past few days have been very difficult to watch. It’s hard not to want to snatch her up and start running, but I know that I can’t really out run what is going on. All we can do now is make her as comfortable as possible. On Wednesday, the doctors and nurses suggested that […]

Jesse and I have reached the point where thankful for me there are no knives or pointy objects in the room ( cause she might use them on me) I threatened to go home a couple of times today, which I shouldn’t be doing because that messes with her sense of security. The day began […]

At this moment we are 13 and 1/2 hours (possibly could be longer or shorter) to stem cell transplant. In about an hour, our nurse will hang a special IV bag with electrolytes to help her get ready for the transplant. From what I have been told the transplant itself can take from 5-15 minutes. […]

And the number 1 ( We did A and 0 yesterday) Yesterday, Monday, Jesse was admitted to hydrate over night in preparation for chemo today. We were in our room by 3pm. I wouldn’t let Jesse go to the playroom because I feel this is setting a dangerous precedent for later in the stay when […]