Author Archives: admin

I woke at 4:50am to the sound of Cummings diesel engine. Interesting enough it was the guy across from us. His dog had wandered over to our camp last night. He was obviously very uncomfortable… which made me nervous. He had made the comment that he was packing last night to leave. I figured that […]

We left St Jude on June 16 to head home for our camper. I know I have left many people in suspense over Jesse’s scans. I am sorry for the delay. I had many things to get completed when we got home sine we will be in Memphis for one more month. On June 16th, […]

June 13 2014 Jesse woke up during the night to use the bathroom. I woke up with her, but unlike Jesse, I stayed awake for two hours afterwards. Around 7, I woke up realizing that I had slept through 2 of my alarms. Yeah. Jesse slept till 8:15. When she woke, she was ravenous. And […]

So behind in updating… and have lost count of days… I decided to take some time off from posting because I was swamped with work, kids, house, and cleaning. Plus we were in a period of recovery with thankfully not much happening. And I was paranoid that I might jinx Jesse into a stay in […]

Day 147 I woke Jesse up at 6:45am to make the trip to clinic. Because of traffic it took me about an hour and 30 minutes to get here. I’ll take it though because tonight I will be sleeping in my own house (even with the dog that pulled all the flowers out of my […]

Day 141 We started the day at 7:30. I had requested that Jesse’s labs be checked on Tuesday in case she needed platelets or blood. We arrived at the isolation door at a little after 8. Another family was inside the holding area waiting. I called D clinic since we didn’t see the isolation nurse. […]

Day 139 Mike arrived about 11am. Jesse was so excited to see him. The hospitalist told us Jesse had 75 platelets, 10.7 red blood, and 2.6 white blood count. Her weight was 14.3kg. At 12:30pm, we started the last dose of antibody. For a day here, it was really mild. And by 6pm, we were […]

Day 137 About 2:30am Jesse woke up wanting to play. She did play with her ipad for a bit before crawling on the couch with me and zonking. We slept for two hours spurts. While she is on chemo, Jesse is required to get up every two hours to pee. And the team told me […]

Jesse was up at 7:30am on her own even with us waking her every 2 hours last night to pee. The night nurse was awesome. She suggested a portable toilet next to the bed to make life easier for Jesse and I. She also let me sleep through some of the wake up times. On […]

Jesse slept till about 8am this morning. We’ve ended up with a room with 2 windows in it, but with the cloudiness the room is dark. Chemo was schedule to start at 8am, and except for a little trouble with the pump, we were on time. The carboplatin ran for an hour. Then it was […]