Author Archives: admin

Jesse woke at 6:30am. She instantly asked me if we could go downstairs and eat in the hotel lobby. She is so excited to be able to do things that have been denied to her for so long. And it has pepped her up. She ate one and half muffins. She also began asking me […]

Jesse was due at clinic at 8am for labs. I figured they would want a sterile urine sample too. You have to prepare Jesse for those. She hates them because she has to been cleaned with betadine. First the clinician took Jesse’s weight: 15.2 kg. I really think their scales are off here. Then her […]

Day 128 I noticed that St Jude has once again scheduled Jesse to see the doctor at the same time as my staff meeting. I could feel the anger rising. They have no regard for the fact I would like to work. I sent them a message asking to have the time moved to 9:30 […]

This afternoon I checked Jesse’s schedule. Yet again they have schedule an appoint with our St Jude oncologist at the time of my staff meeting. I am so tired of the disrespect. And so I clicked the reschedule button. I told them I was not happy having this time scheduled over like it was nothing. […]

Day 121 Jesse and I headed over to clinic at 7:30am. If they pushed back chemo, I wanted to get Jesse and I on the road as soon as possible. We need a break from being treated as incomptent and being shoved into rooms with barely any windows. The clinic nurses got Jesse’s labs and […]

I let Jesse sleep till she woke up this morning. At 9am, she sat up. Funny, I had actually finished my workout and turned the channel to Disney while I grabbed a shower. After I showered, Jesse asked for breakfast. She ate a bowl of cereal, then wanted yogurt with gluten free cereal. She ate […]

Day 117 We went over at 9am for labs to the Medicine Room. After waiting an hour, the results were back. Jesse’s ANC was still 100. Then we had to wait for the doctor to come see here. He was in interesting character. Then we returned to the Grizzlies House to wait for the next […]

Today Jesse and I went over to clinic at 9 am for labs. Until her ANC reaches 500, we have to be seen every day. Yipee 🙁 The clinic nurse and clinician worked to get Jesse’s vitals taken quickly so that we could get out of the building before too long. I appreciate their efforts, […]

Day 114 This morning Mike and Chris left at 8 to head back to Virginia. It’s always hard to watch them go. And I think getting harder. Hopefully we’ll get out later today and not have to deal with the “I know more than thou, even though I have no kids and I’m 26” attitude […]

A nurse last night hooked me up with some extra blankets to make a pallet on the floor. I slept better save for the nurse waking me up. Chris commented that she slept the best she ever had on the couch last night. The nurse did wake me at 6am to let me know Jesse […]