Author Archives: admin

Chris and I tried sleeping on the couch while Mike took the chair. Let’s just say that the buyer of that furniture better not run into me because they will be spending a night on both to get a clue. Around 4am, I gave up the fight opting to sleep on the floor, which was […]

Day 109 Last night there was a very impressive storm here. I heard it over the fan that constantly runs in the room. The fan constantly runs to drown out the sound of I-40. I finally zonked around 3am. The only thing that Jesse had to do at St Jude was school. We did that […]

The last few days I have noticed that Jesse is swelling again in her right hip/ groin area. I don’t know what these means exactly, but I worry that it’s not good. Mike and I also have had several discussions of being really tired of the lack of communication we are receiving from the doctor […]

Yesterday Jesse and I didn’t really do anything. I tried to work, while she was bored and expecting me to entertain her. Not my strong suit when I am trying to work. Today she had school. We are just praying the fevers stay away so she doesn’t end up back in the hospital. Thank you […]

Day 103 On Saturday, I got my car back. Jesse and I ventured out to Target to grab some snacks. The rest of the day was low key. Day 104 On Sunday, Jesse and I rode out to Germantown just to get out of the “cave.” When we returned, she did some school work and […]

Today Jesse and I met the line nurse at 9am. This is the only thing for today that has gone smoothly. She cut the sutures from around Jesse’s line, which looked to be holding a lot of junk. Jesse whined through the entire procedure because of some notion she had in her head it would […]

Sitting here either listening to thunder or a chair scrape the floor above us. According to the Weather Channel (shock shock, they are actually covering the weather!!), a thunderstorm is headed this way. Jesse was worried about it earlier, but I reminded her that we are hiding in a cave right now. We did have […]

Day 97 Yesterday, Jesse received an albutriol treatment before starting the etopophos. For awhile afterwards she seemed to feel pretty good. Then the ifosphomide started, and it was downhill. But other than throwing up, we didn’t have extra issues. Day 98 Today she feels like crap. And crap isn’t even a strong enough word for […]

At 12am, a new nurse woke me up to get Jesse to go to the bathroom. When she is taking chemo, they want her peeing every 2 hours. And being it was a he, I have a feeling that he didn’t feel comfortable with helping her because he kept telling me he couldn’t get her […]