Category Archives: Round Two

We received a call to come to clinic around 10am to sign the consent forms to be in the study. This means that by tonight Jesse will be inpatient at St. Jude’s. And that we’ll get the first dose of chemo on Friday morning. The doses will each be infused for 30 minutes each. On […]

Around 10pm CT, I took Jesse’s temperature. It was 101.1 F. Here a fever is 100.9 or 100.4 for an hour. I called their Medicine Room, which is the equivalent of an Emergency Room. I figured they would remove the caps, take blood samples to make sure she had no infection, and maybe admit her. […]

I forgot to post yesterday. I was wiped by the time we finished everything. December 17, 2013 Today back in Williamsburg, Jesse should have been having her tonsils out and allergy testing. Instead they put the Double Lumen Hickman Line back into her body around 9:30am CT (still trying to get used to central time […]

Thursday, December 12, 2013 We meet with Jesse’s oncologist at CHKD. The news is not good. Jesse’s neuroblastoma has reoccurred.  Our doctor gave us three choices: Do chemo at CHKD Undergo MIBG therapy: Here they take the MIBG radioactive isotope, make it more radioactive, inject in Jesse’s body, and she has to sit in a […]

Let me start at the beginning… so I don’t get too confused myself. I haven’t updated in awhile because honestly there was nothing to update. Jesse went for scans in July and came back showing no change. We rejoiced, camped some more, and prepared for her first year of full time school. September – Back […]