Yesterday Jesse and I made the trip to CHKD for blood work, urine analysis, and exam in preparation for starting the last round of Accutane. After this round, we have just scans….
Traffic scared me. Where in the world was everyone? I actually drove through the HRBT at 55mph… that is far from normal for 7 in the morning on a Monday. And I only saw 1 bus… usually have to deal with several. My biggest guess is that the guy or gal who is petrified of the tunnel went on vacation this week.
Prior to this we had 2 weeks off. Two very quiet weeks thankfully 🙂 I went to the Bizarre Bazaar. Didn’t buy anything, but got some awesome ideas for projects I’d like to tackle to help raise money for cancer research or RocSolid, which is a local organization helping families of childhood cancer patients. They built Jesse a playground last March.
We hung out with friends, worked, and just enjoyed being home. It is very nice to not have any inpatient stays. I really hope we don’t have to do that again.
Jesse had her normal Accutane rage, which has now started to combine with the Terrible Threes. My mom witnessed it yesterday over not getting candy when she went on the toilet. She screamed at me for about 15 – 30 minutes. I never give her candy for going. I tell her that expect her to use the toilet.I wonder if she was thinking, “If I scream enough, Grandma will go behind Mom’s back.” Luckily Mom is awesome and doesn’t do that to me 🙂
It was nice that she used the toilet at clinic yesterday. We have had to pad her diaper in the past, and wait 6 hours or more to get enough urine for the analysis. Even had to involve Fred the IV pole on a few occasions.
Her counts were great, except for her CO2. That was low, but the doctor felt that might have occurred from how they drew the blood. I asked him about her freckles that magically have been appearing on her face in the last week. I saw a faint one on her lip Wednesday, and by Friday it was dark. The doctor wasn’t concerned about them. At this stage of the game, they make me nervous because they are new. It’s hard to articulate what I mean right now because I lost my thought process having to stop to tell the girls not to lay in the toy box.
We left clinic by 10:30am, and headed back to Williamsburg. I had one stop to make on the way in to pick up a present I’d order online.
This week starting Wednesday, 94.9 The Point, will be holding a radiothon for CHKD to help raise funding for the hospital. It will be on till Saturday.