Wednesday, January 16, 2013
Jesse and I made the approximately 50 mile one way drive to CHKD in the rain. It’s been raining here for 4 days now… I would say that I am going to need an ark, but well they are calling for snow tonight… I am so excited (not).
We started by stopping in at oncology to get an IV inserted into Jesse’s hand. This way they can take blood labs they need and the line is ready for the MIBG injection and sedation on Thursday morning. I know I sound redundant, but poking Jesse 1 time versus 3 times… well that makes going to the hospital a million times easier.
After putting in the line, we went for Jesse’s renal ultrasound. She hates the ultrasound. I am not 100% sure why. The only thing I can think of is she really doesn’t like the gel even though the technicians are great about using warm gel.
I was hoping while we were in ultrasound that maybe her MIBG isotope had arrived so that injection could be done because we were a little crunched for time. Her renal ultrasound was at 11:30am. Then we were to meet with the Nephrologist at 1pm, back to radiology for the MIBG injection at 1:30pm, and audiology at 2pm.
Unfortunately the isotope was running behind because of the weather. So Jesse and I grabbed a bite to eat and went to visit friends in Child Life and on 8B.
Then we headed to the 5th floor to see the nephrologist. They were the busiest I have every seen them! At 1:40pm, I asked a nurse if we could be seen soon because we needed to go audiology. The great news with nephrology is that her kidney hasn’t changed. Not bigger, not smaller. Yeah!
Luckily the nuclear technician had called to let us know that poor Fedex was running behind, and it would be 3pm before the isotope arrived.
This actually worked out well anyway. There is no way we could have crammed everything into the originally scheduled hour.
In audiology, Jesse was getting tired of all the testing and poking causing her to start balking when requested to put pennies in the cup at the sound of the beeps. She did pass her hearing, but the audiologist detected negative pressure in her left ear. She thinks that either Jesse is getting another ear infection or getting over the one she had a month ago. I hoping for the latter, but will keep an eye on her… which with her and her ears is hard. She never says they hurt… she either digs or melts down.
Then it was down to the first floor and back to radiology. When we tried to put the saline in Jesse IV to test the line, she started screaming. Luckily we thought to get her singing songs so that we could get the isotope in and flushed as it was supposed to be.
At 3:15pm, Jesse and I were on our way back to Williamsburg with the line in her arm.
Thursday, January 17, 2013
Jesse and I were at radiology by 6:15am. Since she was basically ready to go, she was able to go back 45 minutes earlier.
By 9am, they had done the MIBG scan and CT scan.
And we headed back to Williamsburg. Tomorrow we’ll head back for results and to see the cardiologist.