Author Archives: admin

Our nurses last night didn’t leave a great impression on me. It was one nurse training another. I understand that they are trying to make an effort in society, but hi I live with her. I gave birth to her. I don’t mistreat her in anyway… please stop by my house, you will see that […]

Once again Jesse and I were up at 1am and 3am trying to pee. No luck and since she was falling asleep on the toilet, I would only let her try for 45 minutes before telling her no more. At 3am she was successful with #2… which grossed her out badly. Amazingly she didn’t throw […]

Around 1am Jesse woke up. She asked me to put on Scooby Doo. I dosed back off. Around 3am, Jesse woke me again saying she needed to do #1 and 2. It didn’t take her long to do her business. While she was sitting there she noticed that Santa had come by with a toy […]

They started the antibody at 8:30pm last night. Turns out that Jesse only made 3 hours through antibody this afternoon. So the infusion will take 5 hours. I am not upset about it… like we are going anywhere else. The premedication of benedryl and morphine seem to have knocked her out for a bit. I […]

Thank you everyone for the comments.  We have really appreciated the positive thoughts, prayers, cards, videos, and words of comfort. Jesse awoke at 4am. She was running a slight fever, but she wasn’t drowsy. Since we were both awake, I went to grab a shower. Parents can’t use the bathroom in the kid’s rooms here. […]

Around 1am, I heard Jesse call out “Mommy.” I answered with “Yes?” Her reply, “I wasn’t talking to you.” Then I heard her tell her sister let’s pretend. Not sure what they were pretending. Often they pretend that one of them is Mommy. Jesse awoke around 4am wanting to use the bathroom. She was convinced […]

Today Jesse started the humanized antibody. She woke me up before 8am asking Landan, her 6 week younger buddy from home, if she could play with a toy horse. At 9:30am, she began her chemo. This went quietly. She even ate breakfast while it was taking place. Not all of it, but at least a […]

I am wiped from an emotional day… plus back home it’s 11:30pm EST. The morphine pump through the night lessened her pain, but she was still having shooting pains in her right leg. From Wikiepdia: At 7:45am our nurse took us down to the Interventionist Radiology to place Jesse nephrostomy tubes. We really have no […]

We received a call to come to clinic around 10am to sign the consent forms to be in the study. This means that by tonight Jesse will be inpatient at St. Jude’s. And that we’ll get the first dose of chemo on Friday morning. The doses will each be infused for 30 minutes each. On […]

Around 10pm CT, I took Jesse’s temperature. It was 101.1 F. Here a fever is 100.9 or 100.4 for an hour. I called their Medicine Room, which is the equivalent of an Emergency Room. I figured they would remove the caps, take blood samples to make sure she had no infection, and maybe admit her. […]