Author Archives: admin

Ok so I am basically trying to stay awake for Jesse’s 11pm dose of zofran. I know the doctors and nurses say the nausea is less with irintoecan and temolozide… but for Jesse it is ranking pretty close to cisplatin. Cyclo/topo rounds were not this severe. Jesse woke me at 6am with diarrhea. She had […]

Yesterday was an improvement over earlier this week. The triage was running on time, and Jesse labs were drawn on time. Her weight has increased to 15.4kg. Jesse was really calm getting her labs drawn. I am starting to think it is that one woman Jesse has associated with being evil or something. When we […]

Because of needing fluids, our nurse practitioner scheduled a lab for 9:30am to check her levels. Jesse and I left RMH early because of the ice that was falling and an employee here saying the roads were bad. We checked in at registration, who directed us to the Triage in Chili’s Car Center. Since we […]

Day 57 at St Jude Jesse and I headed over to St Jude about 9:30. Her first stop was school. Jesse was excited to participate in class again. While she did that, I checked the mail and took it out to the car. Jesse was feeling pretty horrible yesterday. This new chemo has socked more […]

Day 54 Yes I am off a day or two… just did the start of Day 53 yesterday. But fortunately the rest of yesterday was boring. I always giggle to myself when I think back through my life to how the meaning of that word has changed. The big excitement yesterday was the arrival of […]

I started the day with hooking Jesse up to the eclipse for her dose of meropenem. Jesse slept, which for mankind is a good thing. If she doesn’t meet the required sleep, she becomes difficult. And getting up early doesn’t really mix with this night owl. I woke her up about 7:30am to head to […]

At 8am Jesse and I arrived at St Jude to wait on the medicine room to be ready for her. A little after 8:30, we were called back to get started. The nurse came in with zofran and the telemorozide. This is the first time Jesse has taken a pill chemo. I stopped her from […]

Day 48 On Saturday, we decided to check out the zoo. Jesse had a great time. Then we came back to RMH. Jesse wanted to be outside since it was 67 degrees. I wasn’t going to deny her. She checked out one playground and then decided to try another one. At the second playground, she […]

Jesse and I went to D clinic to wait for her appointment with the nurse practitioner who would be doing the bone marrow biopsy. She came in and I brought up the lump I noticed where Jesse’s left nephrostomy tube had been. I noticed it last night when Jesse complained of pain last night in […]