Category Archives: Jesse Updates

Yesterday Jesse and I made the trip to CHKD for blood work, urine analysis, and exam in preparation for starting the last round of Accutane. After this round, we have just scans…. Traffic scared me. Where in the world was everyone? I actually drove through the HRBT at 55mph… that is far from normal for […]

Mike and I laughed so hard tonight at Jesse’s fortune cookie: “Today you should be a passenger. Stay close to a driver for a day.” As I type this, Jesse is doing just that.  There are days that I feel like she has a little internal homing beacon set to “Locate Mom.” This morning, Jesse […]

A Year has passed since that night on November 3, 2010 when 2 doctors had the arduous task of telling us Jesse has a tumor. What a crazy year… At this moment Jesse is 90 minutes from completing the antibody infusion. We’ll have 6 more days of shots. Yesterday I left to head back to Williamsburg […]

PICU here at CHKD is hopping. I really hope that all the kids that are having to stay will be okay. I have seen far more teary eyed parents in 2 days than I have seen in other Antibody Rounds. Jesse slept until 7am when we woke her because her blood pressure was really low […]

We have been very busy these last three weeks. Jesse and I have made the clinic trip at least once a week. During the 2nd week visit, I told her oncologist I was over dealing with residents when he told me that a resident was going to see Jesse first in clinic. He reassured me […]

This is the one I was after because it has Mike with the hand print on his forehead 🙂

For how I feel. I’ll get to why in a moment. Jesse’s antibody finished at 10:30pm Thursday night. She did spike a fever, so the nurse cultured her caps around 11pm. At 1am, they moved us up to 811, the room we spent three weeks in for stem cell transplant. After a fitful night sleep, […]

For Jesse it has been a long 2 weeks. On September 26, we began the il-2 infusion. I stayed with her until Thursday last week. The il-2 infusion last 96 hours, and for Jesse was a pretty quiet event. She finished at 5:30 on Friday evening. And since she needed a transfusion, she and Mike […]

And Jesse gets to put a hand print on a lab coat. This is from Wavy TV 10. Mike is holding her 🙂 Hyundai drives $100K donation to CHKD: wavy.com

We began round 2 of the il-2 on Monday. Clinic was very different that day. Jesse’s new CVL fully cooperated, and we had her labs drawn in no time. Her ANC came back around 3000 and her other counts were great. Tonight, she is starting to run a fever. So far it has been around 37.6 […]