Category Archives: Round Two

In the middle of the night, Jesse needed to go #1. As I was getting her up, I noticed that her left nephrostomy tube was tinged red. Mike and I called the nurse. She called the doctor, and he requested a urinary analysis. He mentioned that the tube could have shifted in the kidney. Or […]

Mike and Christine arrived a little after 8pm CT last night. Jesse woke briefly to see them, and then was out again. Mike told me about a very nice lady that helped them on the plane. Her sister had been a patient at St. Jude. I am very grateful for her help and kindness. It […]

Our nurses last night didn’t leave a great impression on me. It was one nurse training another. I understand that they are trying to make an effort in society, but hi I live with her. I gave birth to her. I don’t mistreat her in anyway… please stop by my house, you will see that […]

Once again Jesse and I were up at 1am and 3am trying to pee. No luck and since she was falling asleep on the toilet, I would only let her try for 45 minutes before telling her no more. At 3am she was successful with #2… which grossed her out badly. Amazingly she didn’t throw […]

Around 1am Jesse woke up. She asked me to put on Scooby Doo. I dosed back off. Around 3am, Jesse woke me again saying she needed to do #1 and 2. It didn’t take her long to do her business. While she was sitting there she noticed that Santa had come by with a toy […]

They started the antibody at 8:30pm last night. Turns out that Jesse only made 3 hours through antibody this afternoon. So the infusion will take 5 hours. I am not upset about it… like we are going anywhere else. The premedication of benedryl and morphine seem to have knocked her out for a bit. I […]

Thank you everyone for the comments.  We have really appreciated the positive thoughts, prayers, cards, videos, and words of comfort. Jesse awoke at 4am. She was running a slight fever, but she wasn’t drowsy. Since we were both awake, I went to grab a shower. Parents can’t use the bathroom in the kid’s rooms here. […]

Around 1am, I heard Jesse call out “Mommy.” I answered with “Yes?” Her reply, “I wasn’t talking to you.” Then I heard her tell her sister let’s pretend. Not sure what they were pretending. Often they pretend that one of them is Mommy. Jesse awoke around 4am wanting to use the bathroom. She was convinced […]

Today Jesse started the humanized antibody. She woke me up before 8am asking Landan, her 6 week younger buddy from home, if she could play with a toy horse. At 9:30am, she began her chemo. This went quietly. She even ate breakfast while it was taking place. Not all of it, but at least a […]

I am wiped from an emotional day… plus back home it’s 11:30pm EST. The morphine pump through the night lessened her pain, but she was still having shooting pains in her right leg. From Wikiepdia: At 7:45am our nurse took us down to the Interventionist Radiology to place Jesse nephrostomy tubes. We really have no […]