Category Archives: Round Two

Day 48 On Saturday, we decided to check out the zoo. Jesse had a great time. Then we came back to RMH. Jesse wanted to be outside since it was 67 degrees. I wasn’t going to deny her. She checked out one playground and then decided to try another one. At the second playground, she […]

Jesse and I went to D clinic to wait for her appointment with the nurse practitioner who would be doing the bone marrow biopsy. She came in and I brought up the lump I noticed where Jesse’s left nephrostomy tube had been. I noticed it last night when Jesse complained of pain last night in […]

At 5:45 my alarm went off to wake me to do Jesse’s meropenem. The alarm went off again at 6. I got up, cleaned her CVL, attached the elipse, and set my alarm to get another few minutes of sleep. At 6:30, I disconnected the elipse, and began getting ready to have Jesse drink her […]

Jesse woke up before I did this morning. I am exhausted, so I slept a little longer with her sitting next to me in the chair. Around 8:45am, I started to wake up. The nurse came in with the news that Jesse’s ANC was 700! Glad I was wrong on that one 🙂 Her hemoglobin […]

This morning the first thing I asked Jesse when she woke was where she hurt. Praise the Lord she didn’t hurt anywhere! Her hemoglobin was 8, platelets 54, ANC 100, and white blood count 1.1. It is interesting to me that last time her ANC rose to 100 her white count was .6. I think […]

Well I finally did it. I tripped over the pole… taking it and Jesse down. By the grace of God, I didn’t pull her CVL out of her. I can’t tell you how horrid I feel. Jesse has a scratch on her back at the base of her neck. Right now that is the only […]

Last night Mike, Chris, and I played UNO while Jesse watched. After a bit, it was obvious that both were done. It’s exhausting sitting around in a hospital room doing nothing but waiting… Jesse was determined to stay in my lap all evening. She actually feel asleep in my arms. I am not sure if […]

About 1am, the nurse let me know that Jesse’s line culturing was graham positive. At this point all I know is she has an infection in her line. I don’t know what kind 🙁 They did start her on vicamycin. And since 8pm last night she (knock on wood) has not run a fever. The […]

Jesse felt warm to me when we woke up this morning. I took her temperature: 100 degrees Fahrenheit. I gave Jesse her morning meds, and we headed to over to triage for her blood draw. Thankfully her weight had stayed at 15.2kg (33.5 lbs). At triage, her temperature was still 100. Jesse was talking about […]

This morning Jesse wasn’t interested in eating. I am not sure if her stomach hurt from chemo or from nervousness. Today was her first day in her new class. We went over to St Jude a little early to get her mail. So nice to have my vehicle back 🙂 Class started at 10am and […]