At 8 am PDT, Jesse and I headed for the hospital. Her labs were drawn, and we started our waiting for the results. The results are not good. Her bilirubin total has jumped to 6.9. To put it bluntly, her liver is failing. And Jesse does look more yellow to me. The doctor left to […]
Category Archives: Seattle
July 5 – 7, 2015
July 5, 2015 Jesse’s chemo completed at 3:30 pm. She still had 4 hours of hydration to help her body get rid of the excess chemo. Plus we needed her creatinine to come down. If it was .7, this might stop the T-cell give back. At 9:30pm, we were finally able to leave. And the […]
July 4 & 5, 2015
July 4, 2015 I woke at 7 am to get ready for Jesse inpatient admission for cyclophospormide (cytoxan) and fludarabine. At 8 am, the nurse called to say they were ready. I finished cleaning up our room, dressed Jesse, gathered our belonging, and headed for the hospital. Unfortunately outside the wagon we’d been using was […]
June 19 thru July 3, 2015
Friday, June 19, 2015 Mike and I decided to take the girls camping for the weekend. We had heard nothing from Seattle about Jesse’s t-cells. At 6pm, I received an email with a tentative schedule. They would need us to arrive on June 28th to start the process. I will be bluntly honest. I am […]
May 27 – June 1, 2015
May 27, 2015 Last night Jesse waited me out to go to sleep. I kept telling her to go ahead while I finished up laundry, but she was determined to fall asleep when I did. At 9:30pm, I took her temperature again. It was 97.9. When I woke at 2:30am, I took it – 98.9. […]
May 26, 2015
Jesse had a really hard time getting comfortable last night to go to sleep. And this morning she was complaining of pain in her right femur and both hips. During the day that pain has now migrated back to the right flank. I have been giving her oxycodone as much as allowed, but it is […]
May 25, 2015
Yes I have not posted in quite sometime. We have been busy and I have been a tad lazy when it comes to the blog. Horrible. Since December we have been traveling back and forth between Hershey, PA; home; and CHKD. I love the staff at Hershey as much as I love Jesse’s team at […]